Resting at home

So it's been a couple of days since the last post.

We are home. We were discharged on Friday late afternoon. It took a while to work out all the details and to make sure we have all new meds and equipments needed at home.

Not sure if they will ever read this, but we wanted to say thank you to the PICU team, they were great as always. Special mention to nurse Carol and Karen and to Dr. P.

Jagger has been OK since we been home and has not suffer from any spasms since Thursday!  

He still has a lot of secretions that he can't eliminate on his own so he requires suction several times a day but Annett is getting really good at it.

One of the hospice nurse came by on Saturday to check on him and see if we have all that we need. She also called the medical supplies company to get more oxygen tanks and to come check on our concentrator as it did not seem to work.  They came by later that afternoon and we are all set with the oxygen now.

Saturday evening was pretty nice, we took turn holding Jagger and were able to all sit down and have a family dinner. First time since 2006 and our wedding we all eat together. We had Shabu Shabu and everyone loved it.

Annett parents left later that evening and they are driving back to New York today. They are planning on coming back in about 5 to 6 weeks, hopefully we don't need to have them back here as an emergency before then. 

Jagger had a good night and did not wake up until 10am this morning.

He got to spend a little more time with my parents and brother this morning and we left for the airport early afternoon.

Of course it was pretty sad goodbyes as this is probably the last time they get to see Jagger. We will try to get them back over here in a few months but again it is impossible to make any plan more than a couple days out with Jagger condition so we shall see.

So after I got back from the airport I got to spend all afternoon with my little cuddle body. We watched football for several hours ( well I watched and Jagger slept most of the time! lol). For the few moments he was awake today, we even got some really big smiles, which are awesome!