Missing daddy

I guess I should contribute as well from time to time. So far Sebastien has been the one diligently updating the blog. We are at home and Jagger is doing ok. He started his crazy movements again. Never stops moving when awake and twisting and bending his body it hurts just to look at him. Something you've only seen at the circus. He is not crying though so instead of increasing his pain Meds we decided to start him on movement disorder Meds. He was on them before but we didn't know if they were indeed working. Well we know now. Other than that Jagger misses his daddy terribly. Daddy went on a business trip for a few days and neither mommy nor Jaggy are happy about it. Daddy is Jagger's favorite person. When daddy is here Jagger's world is at peace.
On another note, we took the IV out today. Since he has a port it is quite easy to access and deaccess as long as you have the right tools. We even were able to do a pt session today with our wonderful therapist.
Now we are waiting inpatiently for daddy's return so that Jaggy's world is back to normal and mommy can eat and brush her teeth without screaming baby background music.