After we found out that Jagger has a Mitochondrial disease, we were able to find a lot of good info from the United Mitochondrial Disease Foundation (UMDF).
Of course, since I can't stay still, I decide to get involve with the UMDF. I first attended the symposium in DC last June and it was such a great event, along with 3 other Mito parents, we organized a small symposium synopsis in Atlanta upon our return to be able to share the info that was presented in DC with all the Mito families that could not make it to DC.
Another event I am currently involve with is the Energy For Life (EFL) Walkathon. I am in the organizing committee and I am the Co-Sponsorship lead.
This is the second year for the EFL walk in Atlanta but we did not participate last year as we were very new to the Mito world and not aware of the walk!
However, this year on top of helping to organize the entire walk, we also created a team to support Jagger and join the walk. We decided to keep the same theme as our website: "Moves Like Jagger". After all we will be walking/moving!
The walk is on April 20th, 2013 at Centennial Park in downtown Atlanta. It is right between CNN Center, the World of Coke and the GA Aquarium, so there is plenty to do after the walk if you have never been to Atlanta.
The registration opens at 8 am and the walk starts at 10 am. It is 1 mile thru the Park with beautiful landscaping and great skyline views of the ATL.
We would love for everyone to come walk with us, but we know it is not possible, however you can register as a Virtual walker on our team, even if you cannot be present.
The goal of the EFL is two folds, 1) raise funds to find a cure and 2) promote awareness of Mitochondrial diseases.
So if you are in a position where you can make a donation as big or small as you want/can, that is great, but if you can't please just spread the word about the EFL walk and Mitochondrial disease and feel free to leave us a comment on our EFL page.
Here is the link for our team, we hope a lot of you will join Moves Like Jagger!
EFL Atlanta, Moves Like Jagger
See you on April 20th!
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