We went to see Jagger 's pulmonolgist today. I was pretty excited that I was able to get an appointment with her so quickly. Usually she is booked 4 months in advance. The recent hospitalizations made it very clear that we need to do something differently to care for his lungs. It has been almost a year since we saw Dr. B. we hate to take him out of the house for doctor visits where usually nothing gets accomplished or we learn nothing new but this one was important. We really needed her help to figure out a plan to keep him from having all these pneumonia episodes. No one else has been really helpful with that. Our hospice solution to everything is increase his medicine doses for the narcotics ( eg. Methadone and Valium). I finally told them we disagree with this approach if his pain and discomfort is due to and infection. By now Sebastien and I can usually tell when he's coming down with something and just increasing his Meds will not help his breathing or irritation if the underlying condition/ cause is an infection and will not keep us out of the hospital. This is what I call tunnel vision! Just because he is in hospice or has a terminal illness does not prevent him from getting other infections which can and should be treated.
Dr B. gave us some good ideas and came up with a plan to help clear his lungs and heal them! I does involve more Meds but all inhalation so that's ok.
I was very much looking forward to this appointment expecting her to give us some answers/guidance. Which she did! She is also very knowledgable about mito which helps tremendously. Overall a great visit. Let's see if her plan works!
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