Tuesday, March 13, 2012

Not the best way to celebrate a Birthday

Well it is only fitting that we ended up at the ICU on my birthday, after all we were at the ICU on Annett's birthday too back in November.
Jagger has not been feeling well for a couple of days, but yesterday  he was really not looking good and his breathing was getting a little labored.
We gave him some pain meds and did a couple of breathing treatments but that did not seem to help much.
So about 2 am this morning we called our hospice nurse, she gave us a couple of tips on what we should do. After 1.5 hours, he was still not better and was spiking an high fever, so we drive to the ER.
We were in the ER from 4 to 8.30 am, and they were still worrying about his breathing so they started him on high flow oxygen and Heliox (which is a mix of oxygen and helium, and easier for the lungs to breath) and transferred us to our second home in Atlanta, the ICU.
They took blood and  nasal swaps to run several tests, and we still waiting on results.
The doctor think that Jagger might have RSV or the flu, which would explain the wheezing breathing and the fever.
Believe it or not, that would actually be a good news, I know it is crazy to think that RSV or the flu would be a good news, but if it is not one of those, it more than likely mean that the disease has progress to the brain stem and Jagger will have a very difficult time controlling his breathing on his own from now on. It is the normal progression of the disease but we were hoping it would happen that fast.
So we are going to be in the ICU for a couple of days at least waiting on test results and  to see how his breathing progress when they turn down the oxygen level.
We expect our Neurologist to stop by tomorrow and he might have some more insight on the situation.
Tiffany just came by and brought us sandwiches for dinner, which is very nice, I went to the cafeteria to eat mine as you cannot eat in the ICU rooms. Upon my return, I got the best Birthday present ever, I got a smile from Jagger, it was not a big one, as the poor kid is exhausted and I m sure in some high level of pain, but it was a smile, and it made my Birthday a million time better:)

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