Been a few days sicne the last update, when everything goes well, I will probably only post about once a week or so.
You can sign up on top right to get an email when we have a new post up. I am not 100% sure it is working very well (so still check on here once in a while) but it should help everyone keep up with the updates.
Jagger seems a lot happier since we been home, he is totally a home buddy!! his eyesight is coming back slowly and he is one again smiling big for daddy each time he sees me! I so miss those smiles !
I can see why Dr. K. wanted us to go home as soon as we could when we were in hospital!
He has been on IV since we been back from the hospital (except for one night where we had an issue with the IV bag and could not get the air bubbles out, so we decided to skip the IV). He is eating more and more and the vomiting is about the same as before the hospital stay. Because of his weak intestinal muscle, Jagger will always have vomiting issues, but those days he only vomit about 1 to 2 ounces a day. A few months back he vomited 3 to 4 ounces so we doing better in that category at least.
We have to give so many medications that I had to create a check list so we make sure he get all his meds everyday. Annett and I are mostly giving to him, but Tiffany is in the loop too in case we are not home for any reasons.
He is getting 6 meds around 8.30 to 9 am, 5 more at 2.30 pm, one med around 4 pm, 6 more meds at 9 pm and finally one more around 11pm. It is a big job keeping up with all the meds for sure.
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