Settling at home

Been a few days sicne the last update, when everything goes well, I will probably only post about once a week or so.
You can sign up on top right to get an email when we have a new post up. I am not 100% sure it is working very well (so still check on here once in a while) but it should help everyone keep up with the updates.

Jagger seems a lot happier since we been home, he is totally a home buddy!! his eyesight is coming back slowly and he is one again smiling big for daddy each time he sees me! I so miss those smiles !
I can see why Dr. K. wanted us to go home as soon as we could when we were in hospital!
He has been on IV since we been back from the hospital (except for one night where we had an issue with the IV bag and could not get the air bubbles out, so we decided to skip the IV). He is eating more and  more and the vomiting is about the same as before the hospital stay. Because of his weak intestinal muscle, Jagger will always have vomiting issues, but those days he only vomit about 1 to 2 ounces a day. A few months back he vomited 3 to 4 ounces so we doing better in that category at least.

We have to give so many medications that I had to create a check list so we make sure he get all his meds everyday. Annett and I are mostly giving to him, but Tiffany is in the loop too in case we are not home for any reasons.
He is getting 6 meds around 8.30 to 9 am, 5 more at 2.30 pm, one med around 4 pm, 6 more meds at 9 pm and finally one more around 11pm. It is a big job keeping up with all the meds for sure.

Home sweet home (Hospital Stay Day 21)

After 21 days in the hospital, including one week in the ICU, we are going home!!
We left hospital early afternoon, it took all morning to make sure we have all papers needed to start hospice care, to have sample of the new formula ( we switching Jagger to a higher calorie formula, but it is not available at the store, it has to be special order at medical supply place).
Nurse D. came to the house and we filled paperwork for a few hours.
She will come at least once a week but more of course as needed. They will take care of all the drugs and suppliers, so all his medications will be deliver to our house directly.
She also called Walgreen infusion and they should come over tonight, deliver IV and show us how to start IV, as Jagger needs to be on IV for at least one week, while we try to increase his food intake thru the G tube.

OK, a few hours later and we are now all pro in starting IV fluid. It is not that difficult, the main thing is to make sure you keep everything very clean/sterile as his port line goes straight into his heart so you do not want to introduce infections.
Our house does look like an hospital now with all the meds and equipment, but at least we are home which is the most important.
Jagger eyesight seems to get a little better and according to Dr. K. he should start feeling better once he is back in his environment, so we will see.